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The beginnings of CDKL5
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IFCR celebrates 5th Anniversary with a New Campaign

It has been 5 years since a group of parents set out to find a cure for their children. These parents ... Learn More

GoodSearch: You Search...We Give!

The IFCR is a proud partner of NORD
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CDKL5 Disorder - An Introductory Guide

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Now you can be a part of Research!
Announcing The CDKL5 International Registry Database





There is always a supply of hope on hand here! Welcome to the International Foundation for CDKL5 Research. This site is dedicated to anyone who is affected by CDKL5. We hope that through this site, no family will ever again have to face this diagnosis alone. We are here to welcome you, bring encouragement, educate and give you a place where you can find answers, understanding, and a sense of family, strength and peace. Together, we will find a cure!

We invite you to explore the site and keep checking back as new information will be coming fast and we will constantly be updating with new information.

Watch our new Hope, Love, Cure research campaign video.

CDKL5 Supporting Organizations

CDKL5 UK CDKL5 Itlay CDKL5 Itlay CDKL5 Canada CDKL5 Japan CDKL5 Netherlands
Caley Brown Foundation