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Glyn's Gift

The beginnings of CDKL5
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iPS Disease Modeling and Drug Development in CDKL5

Dr. Muotri will attend the IFCR Science Symposium to be held in the Chicago, IL, area in June. He has ... Learn More

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About IFCR

About IFCR
The International Foundation for CDKL5 Research (IFCR) was incorporated as a non-profit entity in September of 2009. The idea culminated from a group of dedicated parents of CDKL5 children, who dared to dream of something life changing for their children - a cure. The parents realized there was a desperate need for education and research, and this could not be completed without funding. They decided to combine their talents and resources to establish a non-profit foundation to help meet these financial needs. IFCR is committed to collaborating with leading scientists and researchers from around the world who are dedicated to finding a cure for CDKL5.

When you wish upon a STARFISH....
The starfish in our logo reminds those who are fighting CDKL5 to keep going and never give up. In our symbol, green is the color of hope, while the circle represents our children and our ‘family’ in one unbreakable unit. 
 
Another special meaning is The Starfish Story [adapted from The Star Thrower by Loren Eiseley (1907-1977)].  This story (reprinted below) is a powerful reminder that we each have within us the power to make a difference in the lives of others - today. It is refusing to accept failure and by working together we can persevere against the odds. 
 
If you are interested, you can request the use of this symbol the same way you request the use of the IFCR name and logo. Please complete the Use of Name & Logo Form and mail back or scan/email to mralston@cdkl5.com
 
Our children inspire us every day. Will you help us and become a thrower of starfish? 

The Starfish Story
adapted from The Star Thrower
by Loren Eiseley (1907 - 1977) 
 
Once upon a time, there was a wise man who liked to go to the ocean and walk on the beach. 
 
One day, as he was walking along the shore, he looked down the beach and saw a human figure moving like a dancer. He smiled to himself at the thought of someone who would dance to the day, so he walked faster to catch up. 
 
As he got closer, he noticed that the figure was that of a young boy, and that what he was doing was not dancing at all. The young boy was reaching down to the shore, picking up starfish and gently throwing them into the ocean, beyond the breaking waves. 
 
"I must ask, why are you throwing starfish into the ocean?" asked the somewhat startled wise man. 
 
To this the young boy replied, "The sun is up and the tide is going out. If I don't throw them in, they'll die." 
 
Upon hearing this, the wise man commented, "But, young child, do you not realize that there are miles and miles of beach and there are starfish all along every mile? You can't possibly make a difference!" 
 
As if he hadn't heard, the young boy bent down, picked up yet another starfish and threw it lovingly back into the ocean. As it met the water, he turned, smiled and said, "I made a difference to that one!"


 
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