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3rd International CDKL5 Family Conference & Science Symposium

SAVE the DATE!IFCR is excited to announce the 3rd International CDKL5 Family conference and Science ... Learn More

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The IFCR is working hard to bring you the most current and up-to-date information about CDKL5 disorders. Please contact us regarding any questions you may have. We are happy to help you.

IFCR Board of Directors
Katheryn Elibri Frame, DO – President -
Melissa Ralston – Secretary -
Karen Utley – Treasurer -
Kelly Barnes
Dustin Chandler
Amanda Jaksha
Kristin Leopoldino

Learn more about the IFCR's Board of Directors

P.O. Box 926
Wadsworth, Ohio 44282
Family Support Regional Representatives
Patti Waszkiewicz -; cell :631-807-0762
Susan Parks -; cell:  813-215-8466
Southern Region (NC,SC,GA,FL,AL,MS,OK,AR,TN, Puerto Rico)
Karen Utley -; cell: 979-482-6252
Southern Region (LA, TX)
Martha Boyles -; cell: 859-533-7131
Midwest Region (MO,WI,IL,MI,IN,KY,OH, Canada)
Kim Nothdurft -; cell: 602-723-4854
Western Region (NV,UT,AZ,NM, HI)

Amanda Jaksha -; cell: 970-576-2740
Rocky Mountain Region (CO, NE, WY, IA, ND, SD, MN, KS)
Rick & Cynthia Upp -; cell:509-879-6371 
Pacific Coast Region (CA, OR, WA, ID, MT, AK)
Massimo Quaranta - ; phone +39 346 967 3091
Support for international countries not listed above, please contact Melissa at

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