Glyn's Gift

The beginnings of CDKL5

Donations


Our Next Event

For Leah

Please join us at the Fairview American Legion for our benefit in honor of our daughter, ... Learn More
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IFCR & Pepsi Refresh Project

In 2010, Pepsi is giving millions of dollars to fund good ideas, big and small, that make the world ... Learn More

Contact Us

The IFCR is working hard to bring you the most current and up-to-date information about CDKL5 disorders. Please contact us regarding any questions you may have. We are happy to help you.

IFCR Board of Directors
Katheryn Elibri Frame – President
Melissa Ralston – Secretary
Karen Utley – Treasurer
Lisa Cardinale
Shawn Collins
Leita Boltwood
Kelly Barnes


Address
IFCR
P.O. Box 926
Wadsworth, Ohio 44282

Phone:
330-612-2751 or
630-926-1189


Email
keframe@cdkl5.com
mralston@cdkl5.com
kutley@cdkl5.com

Newsletter Sign Up
You may also sign up to receive email updates on any news and events concerning CDKL5 by going to our Sign-Up page and registering your information.  
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