IFCR Store

 Join IFCR Now!

Partner Login

User Name:    Password: 

Glyn's Gift

The beginnings of CDKL5
Our Next Event

Dance for the Cure

Learn More
News

Rare Disease Day Rally in Austin, TX

The IFCR celebrated Rare Disease Day with a rally at the State Capital of Austin, ... Learn More

GoodSearch: You Search...We Give!

Contact Us

The IFCR is working hard to bring you the most current and up-to-date information about CDKL5 disorders. Please contact us regarding any questions you may have. We are happy to help you.

IFCR Board of Directors
Katheryn Elibri Frame, DO – President - keframe@cdkl5.com
Melissa Ralston – Secretary - mralston@cdkl5.com
Karen Utley – Treasurer -  kutley@cdkl5.com
Kelly Barnes
Dustin Chandler
Amanda Jaksha
Kristin Leopoldino
Kim Nothdurft

Learn more about the IFCR's Board of Directors

Address
IFCR
P.O. Box 926
Wadsworth, Ohio 44282
 
Family Support Regional Representatives
 
Patti Waszkiewicz -  pattiw@cdkl5.com; cell :631-807-0762
East Region (ME,VT,NH,MA,RI,CT,NY,NJ,PA,DE,MD,VA,WV)
 
Susan Parks - sparks@cdkl5.com; cell:  813-215-8466
Southern Region (NC,SC,GA,FL,AL,MS,OK,AR,TN, Puerto Rico)
 
Karen Utley - kutley@cdkl5.com; cell: 979-482-6252
Southern Region (LA, TX)
 
Martha Boyles - mboyles@cdkl5.com; cell: 859-533-7131
Midwest Region (MO,WI,IL,MI,IN,KY,OH, Canada)
 
Kim Nothdurft - knothdurft@cdkl5.com; cell: 602-723-4854
Western Region (NV,UT,AZ,NM, HI)

Amanda Jaksha - ajaksha@cdkl5.com; cell: 970-576-2740
Rocky Mountain Region (CO, NE, WY, IA, ND, SD, MN, KS)
 
Rick & Cynthia Upp - rcupp@cdkl5.com; cell - 509-879-6371 
Pacific Coast Region (CA, OR, WA, ID, MT, AK)
 
Italy
Massimo Quaranta - massimoquaranta58@alice.it ; phone +39 346 967 3091
 
 
Support for international countries not listed above, please contact Melissa at mralston@cdkl5.com


Newsletter Sign Up
You may also sign up to receive email updates on any news and events concerning CDKL5 by going to our Sign-Up page and registering your information.  
*Last Name:  
*First Name:  
*Email:  
 Address:
 City:
 State:
 Zip Code:
 Questions/Comments
I have read, understand and agree to the privacy policy, the medical disclaimer, and the terms and conditions
© 2015