Glyn's Gift

The beginnings of CDKL5

Donations


Our Next Event

For Leah

Please join us at the Fairview American Legion for our benefit in honor of our daughter, ... Learn More
News

IFCR & Pepsi Refresh Project

In 2010, Pepsi is giving millions of dollars to fund good ideas, big and small, that make the world ... Learn More

For Families

This section is dedicated to children, families, siblings, relatives, friends, and care givers who are affected by CDKL5. You are not alone. Visit the Support page to connect with other families affected by CDKL5.

In the words of one of our parents, remember that "you don't know how strong you are until you have to be.” Let's be strong together.


Children's Blogs

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