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Glyn's Gift

The beginnings of CDKL5
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Natural History Study

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iPS Disease Modeling and Drug Development in CDKL5

Dr. Muotri will attend the IFCR Science Symposium to be held in the Chicago, IL, area in June. He has ... Learn More

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CDKL5 Events

Dr. Camps Pediatric Dental Center
12/1/2012 12:00:00 AM
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Painting for Hope
10/25/2012 12:00:00 AM
Please join us for an evening of art, wine & amusement benefiting the International Foundation for CDKL5 Research at Studio Vino. Thursday, October 25th, 2012 Doors open at 5:30 p.m. & class starts at 6:00 p.m. Ticket cost $35 ... More
Walk For A Cure
10/13/2012 9:00:00 AM
Come join us in taking the first step toward making a difference in the life of someone with CDKL5. All proceeds benefitting the International Foundation for CDKL5 Research.   Walk For A Cure is Saturday, October 13, 2012 Paseo Del ... More
Toast to a Cure Wine Tasting Fundraiser
10/2/2012 7:30:00 PM
Join us for 'Toast to a Cure,' a Wine Tasting Event to benefit CDKL5 Researh     Talon Winery 7086 Tates Creek Road Lexington, KY    $75 per person or $130 per couple   Please reply by September ... More
2nd Annual Give Charlie A Chance
8/11/2012 4:00:00 PM
Come and meet Charlie & her family!   Dinner served from 5pm-7pm Adults - $8 Kids 6-12 - $5 Kids under 5 - $1   Pulled pork, slaw, baked beans, mac n' cheese, desserts and refreshements Hot dogs & ... More
4th Annual Walk-A-Thon for CDKL5 Research
8/4/2012 12:00:00 AM
Join us for our 4th Annual Walk-A-Thon for CDKL5 Research on Saturday, August 4, 2012 from 8am - 12pm.   Where: Richmond High School Track 35320 Division Richmond, MI  48062   Registration - 8am Walk Begins - ... More
Shift for Cure
7/15/2012 12:00:00 AM
Welcome to our first annual Shift for Cure charity event. This year we have teamed up with the International Foundation for CDKL5 Research. The event will be a road rally starting in Wadsworth, OH and will continue about 120 miles north towards ... More
The Avery Rose Lemonade Stand
7/1/2012 12:00:00 AM
For the entire month of July, 100% of the proceeds of every lemonade will go to CDKL5 Research!     With support from the Bill's Seafood community and Pepsi Cola, enjoy a cold lemonade for all our "Silent Angels" and ... More
Spaghetti Dinner & Illusion Show
6/21/2012 12:00:00 AM
Spaghetti Dinner and Illusion Show June 21st 6 PM Brethren Fellowship Church 339 Lincoln Way East, Chambersburg Raising money for research for CDKL-5 $10 for Adults, $5 for Children 12yr and under. Under 2yr free. ... More
Dinner for a Cure & Treatments of CDKL5
6/12/2012 12:00:00 AM
Eckert's Country Restaurant supports the International Foundation for CDKL5 Research by putting on a Dinner For Cure & Treatments Of CDKL5 on Tuesday, June 12,2012 at   Eckert's Country Restaurant 951 Greenmount Rd ... More
Zumba for a Cure
4/14/2012 12:00:00 AM
Come join Juanjose and many others on dancing our way to a cure! We’re taking a fun approach at raising awareness. Burn calories with certified Zumba instructor Cynthia Deverea Ortiz and help find a cure to this devastating disease at the ... More
Wilcox Energy's Propane Division Teams Up with Team Avery
4/1/2012 12:00:00 AM
Wilcox Energy’s Propane Division is teaming up with Team Avery to raise money & awareness for CDKL5.   Meet Avery Rose Leopoldino.  Avery is 4 years old, she lives in Old Saybrook, and she suffers from a rare genetic ... More
Bills Seafood Annual St. Patrick's Day Celebration
3/17/2012 12:00:00 AM
    Donations are being accepted at the door in support of "TEAM AVERY" and IFCR (International Foundation for CDKL5 Research). All monies rasied will be used to support both awareness and funding towards future ... More
Rare Disease Day USA
2/29/2012 12:00:00 AM
The International Foundation for CDKL5 Research will be participating in the 4th annual observance of Rare Disease Day USA on February 29, 2012. The day has been established as a grassroots advocacy day and everyone is encouraged to participate in ... More

Events By Year:

• 2012  
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