Aim for a Cure
10/19/2013 12:00:00 AM
An event to help finding a cure for children affected by CDKL5.
Bald Mountain Shooting Range 2500 Kern Road, Lake Orion, MI 48360
Saturday October 19th, 2013
Group #1: 2:00 – 3:30 PM
Group #2: 3:30 – 5:00 PM
2013 Toast to a Cure
10/12/2013 7:00:00 PM
An evening of wine, food and music to raise funds for CDKL5 research. This year we will be blessed with the music of The Mercy Men and some great live auction items including a private visit for four to see Zenyatta!!
Skydive for Know 5
10/12/2013 12:00:00 AM
Announcing the first ever KNOW5 Fundraiser/Hair Raiser
The 1st ever SkyDive 4 Know5 is in the works! I’m looking for 5 people to join me in jumping from 18,000 feet. The goal is to raise $5,000 for CDKL5(more would be nice). Each ...
2nd Annual Walk for a Cure
10/5/2013 12:00:00 AM
Saturday, October 5, 2013
8am - Check-in and registration
9am - walk begins
The walk begins Tingley Park
912 10th Street SW (across from the zoo) & ends at Kit Carson Park
Rainman Invitational for Team Avery
9/17/2013 12:00:00 AM
“Team Avery” is honored to announce that they have been selected as the charity of the year for the annual “Rainman Invitational”, a golf event that originated through the guidance and goodness of Mr. Greg Rainey of ...
3rd Annual Give Charlie A Chance
8/31/2013 12:00:00 AM
Save the date!!!!!
The 3rd Annual Give Charlie a Chance (Fundraiser to benefit CDKL5).........
will be on Saturday August 31st
Labor day weekend
At the Northern Ky fairgrounds in Williamstown Ky
I hope to see some of your lovely faces! ...
Cut for a Cure
8/18/2013 10:00:00 AM
Join Salon 56 in supporting Gracelyn, a loving baby girl diagnosed with CDKL5, a rare genetic disorder.
Salon 56 is a proud supporter of the International Foundation for CDKL5 Research. I am sure you are asking ...
Aces for Aiyana
8/15/2013 5:00:00 PM
A Texas Hold'em tournament in support of Aiyana Biyala And the CDKL5 Foundation.
Thursday, August 15, 2013 - 5pm – 9pm
Lenexa Side Pockets
13320 W 87th St Pkwy
Lenexa, KS 66215
Spaces are limited! ...
Let's Swirl Fundraiser
8/11/2013 12:00:00 AM
Visit U Swirl Frozen Yogurt between August, 11, 2013 and August 18, 2013 and 25% of proceeds will be donated to the IFCR
Visit these two participating locations!
5011 Montgomery NE –884-0449
115 Harvard Dr ...
Family Picture Fundraiser
8/11/2013 12:00:00 AM
Donate $10 to benefit the IFCR and your family will receive a 10 minute portrait session and a 10 x 14 print for FREE!!
For a printable flyer, click here ...
BINGO for a Cure
8/4/2013 1:30:00 PM
Holy Family Parish Hall
562 Atrisco Drive SW
Albuquerque, NM 87105
Sunday August 4, 2013
1:30pm - 4:00pm
15 Regular Games
$2.00 a card or 6 Cards for $10.00
Packets & Tickets can be purchased in Advanced (save $5.00 on ...
5th Annual Walk A Thon for CDKL5 Research
8/3/2013 12:00:00 AM
Join us for our 5th Annual Walk-A-Thon for CDKL5 Research on Saturday, August 3, 2013
Richmond High School Track
Richmond, MI 48062
Registration - 8am
Walk Begins - 9am
CDKL5 Craft Fair
7/13/2013 9:00:00 AM
Join us Saturday, July 13, 2013 for a CDKL5 Craft Fair at
Westside Community Center
1250 Isleta Blvd SW
Albuquerque, NM 87105
See you there! ...
Lily Anna's Splash for a Cure
7/10/2013 5:30:00 PM
Come splash with us! We will have food, swimming, games, raffles, silent auctions and more! Entry is free and donations will be accepted! All proceeds from Splash for a Cure will go to IFCR (international foundation for CDKL5 research) a 5013-C ...
4th Annual Avery Rose Lemonade Stand
7/1/2013 12:00:00 AM
This is the 4th annual TEAM AVERY LEMONADE STAND with proceeds to benefit IFCR to promote awareness and research. The Bill's Seafood community and Pepsi sponsors in Westbrook, CT have been overwhelmingly generous and kind in their ...
Scrappin' and Craftin' for CDKL5
6/29/2013 9:00:00 AM
Team Bella is excited to announce they will hosting "Scrappin' and Craftin' for CDKL5" on June 29th in Richmond,MI. All scrapbookers and crafters are invited to come spend a day working on their projects. The day will include breakfast, ...
3rd Annual CDKL5 Garage & Bake Sale
6/29/2013 12:00:00 AM
Please join us on June 29th at our 3rd Annual Garage and Bake Sale to support Leah and the International Foundation for CDKL5 Research!
During this Neighborhood Garage sale we will be raising funds and awareness for ...
CDKL5 Awareness Meet-Up in Austin TX
6/14/2013 5:55:00 PM
START: 6/14/2013, 5:55 P.M.
END: 6/14/2013, 7:30 P.M.
WHERE: Austin Marriott South
4415 S. IH-35
Austin, TX 78744
June is CDKL5 Awareness Month! CDKL5 awareness volunteers in
Central Texas are hosting a ...
Hope Love Cure Avery Ride
6/2/2013 12:00:00 AM
Live Entertainment, Food, Vendors,
Classic Car & Bike Show, Motorcycle Field Trials
Rain or shine
Sunday, June 2, 2013
Ride registration 9:30am
Ride (52 miles) begins at 11am, ...
2nd Annual Spaghetti Dinner & Illusion Show
5/23/2013 6:00:00 PM
May 23, 2013 at 6pm
Brethren Fellowship Church
339 Lincoln Way East
$10 for adults
$5 for kids (12 and under)
Join us for a spaghetti dinner and illusion show by Brett Myers. Mr. ...