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Glyn's Gift

The beginnings of CDKL5
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Natural History Study

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iPS Disease Modeling and Drug Development in CDKL5

Dr. Muotri will attend the IFCR Science Symposium to be held in the Chicago, IL, area in June. He has ... Learn More

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CDKL5 Events

Aim for a Cure
10/19/2013 12:00:00 AM
An event to help finding a cure for children affected by CDKL5.  Bald Mountain Shooting Range 2500 Kern Road, Lake Orion, MI 48360 Saturday October 19th, 2013 Group #1: 2:00 – 3:30 PM Group #2: 3:30 – 5:00 PM ... More
2013 Toast to a Cure
10/12/2013 7:00:00 PM
An evening of wine, food and music to raise funds for CDKL5 research. This year we will be blessed with the music of The Mercy Men and some great live auction items including a private visit for four to see Zenyatta!! Located at: Ashford ... More
Skydive for Know 5
10/12/2013 12:00:00 AM
Announcing the first ever KNOW5 Fundraiser/Hair Raiser   The 1st ever SkyDive 4 Know5 is in the works! I’m looking for 5 people to join me in jumping from 18,000 feet. The goal is to raise $5,000 for CDKL5(more would be nice). Each ... More
2nd Annual Walk for a Cure
10/5/2013 12:00:00 AM
 Event Schedule Saturday, October 5, 2013 8am - Check-in and registration  9am - walk begins Where The walk begins Tingley Park 912 10th Street SW (across from the zoo) & ends at Kit Carson Park ... More
Rainman Invitational for Team Avery
9/17/2013 12:00:00 AM
“Team Avery” is honored to announce that they have been selected as the charity of the year for the annual “Rainman Invitational”, a golf event that originated through the guidance  and goodness of Mr. Greg Rainey of ... More
3rd Annual Give Charlie A Chance
8/31/2013 12:00:00 AM
Save the date!!!!! The 3rd Annual Give Charlie a Chance (Fundraiser to benefit CDKL5)......... will be on Saturday August 31st Labor day weekend At the Northern Ky fairgrounds in Williamstown Ky I hope to see some of your lovely faces! ... More
Cut for a Cure
8/18/2013 10:00:00 AM
  Join Salon 56 in supporting Gracelyn, a loving baby girl diagnosed with CDKL5, a rare genetic disorder.   Salon 56 is a proud supporter of the International Foundation for CDKL5 Research.  I am sure you are asking ... More
Aces for Aiyana
8/15/2013 5:00:00 PM
A Texas Hold'em tournament in support of Aiyana Biyala And the CDKL5 Foundation.   Thursday, August 15, 2013 - 5pm – 9pm   Lenexa Side Pockets 13320 W 87th St Pkwy Lenexa, KS 66215   Spaces are limited! ... More
Let's Swirl Fundraiser
8/11/2013 12:00:00 AM
Visit U Swirl Frozen Yogurt between August, 11, 2013 and August 18, 2013 and 25% of proceeds will be donated to the IFCR   Visit these two participating locations! 5011 Montgomery NE –884-0449 115 Harvard Dr ... More
Family Picture Fundraiser
8/11/2013 12:00:00 AM
Donate $10 to benefit the IFCR and your family will receive a 10 minute portrait session and a 10 x 14 print for FREE!! For a printable flyer, click here ... More
BINGO for a Cure
8/4/2013 1:30:00 PM
Holy Family Parish Hall 562 Atrisco Drive SW Albuquerque, NM  87105 Sunday August 4, 2013 1:30pm - 4:00pm 15 Regular Games $2.00 a card or 6 Cards for $10.00 Packets & Tickets can be purchased in Advanced (save $5.00 on ... More
5th Annual Walk A Thon for CDKL5 Research
8/3/2013 12:00:00 AM
Join us for our 5th Annual Walk-A-Thon for CDKL5 Research on Saturday, August 3, 2013    Where: Richmond High School Track 35320 Division Richmond, MI  48062   Registration - 8am Walk Begins - 9am ... More
CDKL5 Craft Fair
7/13/2013 9:00:00 AM
 Join us Saturday, July 13, 2013 for a CDKL5 Craft Fair at   Westside Community Center 1250 Isleta Blvd SW Albuquerque, NM  87105     See you there! ... More
Lily Anna's Splash for a Cure
7/10/2013 5:30:00 PM
Come splash with us! We will have food, swimming, games, raffles, silent auctions and more! Entry is free and donations will be accepted! All proceeds from Splash for a Cure will go to IFCR (international foundation for CDKL5 research) a 5013-C ... More
4th Annual Avery Rose Lemonade Stand
7/1/2013 12:00:00 AM
This is the 4th annual TEAM AVERY LEMONADE STAND with proceeds to benefit IFCR to promote awareness and research. The Bill's Seafood community and Pepsi sponsors in Westbrook, CT have been overwhelmingly generous and kind in their ... More
Scrappin' and Craftin' for CDKL5
6/29/2013 9:00:00 AM
Team Bella is excited to announce they will hosting "Scrappin' and Craftin' for CDKL5" on June 29th in Richmond,MI. All scrapbookers and crafters are invited to come spend a day working on their projects. The day will include breakfast, ... More
3rd Annual CDKL5 Garage & Bake Sale
6/29/2013 12:00:00 AM
  Please join us on June 29th at our 3rd Annual Garage and Bake Sale to support Leah and the International Foundation for CDKL5 Research!    During this Neighborhood Garage sale we will be raising funds and awareness for ... More
CDKL5 Awareness Meet-Up in Austin TX
6/14/2013 5:55:00 PM
START: 6/14/2013, 5:55 P.M. END: 6/14/2013, 7:30 P.M. WHERE: Austin Marriott South 4415 S. IH-35 Austin, TX 78744    June is CDKL5 Awareness Month! CDKL5 awareness volunteers in Central Texas are hosting a ... More
Hope Love Cure Avery Ride
6/2/2013 12:00:00 AM
  Live Entertainment, Food, Vendors, Classic Car & Bike Show, Motorcycle Field Trials Rain or shine   Sunday, June 2, 2013 Ride registration 9:30am   Ride (52 miles) begins at 11am, ... More
2nd Annual Spaghetti Dinner & Illusion Show
5/23/2013 6:00:00 PM
May 23, 2013 at 6pm Brethren Fellowship Church 339 Lincoln Way East Chambersburg, PA $10 for adults $5 for kids (12 and under)   Join us for a spaghetti dinner and illusion show by Brett Myers.  Mr. ... More
The First Annual International CDKL5 Yummy Mummy/Mommy Weekend
2/28/2013 12:00:00 AM
On Rare Disease Day (February 28, 2013), an international group of 30 mothers from around the world who know each other only through Facebook, will meet face-to-face for the first time at a weekend event they’ve named, “The First ... More

Events By Year:

• 2013  
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