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Glyn's Gift

The beginnings of CDKL5
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Natural History Study

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iPS Disease Modeling and Drug Development in CDKL5

Dr. Muotri will attend the IFCR Science Symposium to be held in the Chicago, IL, area in June. He has ... Learn More

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CDKL5 Events

3rd Annual Walkathon in NM
10/18/2014 12:00:00 AM
Join us for our 3rd Annual Walk-a-thon to raise awareness for CDKL5.   This beautiful 5-mile walk will take you through Tingley Park and Duck Pond.   Check-in is at 8:30am and the walk begins at 10am.      ... More
Toast to a Cure
10/17/2014 12:00:00 AM
Come and Join in the 2014 Toast to a Cure festivities being held this year on October 17th from 7pm until 10:30pm at the Cardome Center in Georgetown KY.  This is a wonderful night of music, great local wine, food and friendship that ... More
1st Annual North Jefferson Century Ride
10/11/2014 12:00:00 AM
The North Jefferson Century is a beautiful ride through Northern Jefferson County located in Central Alabama.  The ride is set for October 11th, 2014.   All registration fees will go to the International Foundation for CDKL5 .  CDKL5 ... More
Ride for Karly
10/4/2014 12:00:00 AM
  Motorcycle ride with a spaghetti dinner to follow.  Dinner includes door prizes, 50/50 raffle, and cash bar. Ride starts at 11AM  and dinner will begin around 1:30PM. Chambersburg, PA is only 30 minutes from ... More
Skydive for Know 5, Part II
9/27/2014 12:00:00 AM
 100% Pure Adrenaline! Yes, we will be jumping out of planes for charity. Why? Because the children deserve it. They have courage, so do we. We will be jumping with Alabama's Premier Skydiving Center, Skydive Alabama . If we ... More
Queen of our Hearts Texas Hold 'Em Poker
9/20/2014 6:00:00 PM
  To register, visit: ... More
6th Annual Walkathon for CDKL5 Research
9/13/2014 9:00:00 AM
Team Kiera is hosting the 6th Annual Walkathon for CDKL5 Research, and we invite everyone to join us for a wonderful day of family fun, great food and raffle prizes, entertainment and more! Please help us reach our goal of raising $25,000 for ... More
Strides for Starfish 5K
7/12/2014 9:00:00 AM
Strides for Starfish 5K July 12th, 2014 @ 9am Acacia Reservation Lyndhurst, OH 5K starts at 9am 1 mile fun run at 10am Race Day Registration and Packet Pick-Up from 8 – 8:45 Registration $ 25 for 5K, $ 15 for fun run ... More
The 2nd International CDKL5 Family Conference
6/26/2014 12:00:00 AM
The IFCR is excited to invite you to its 2nd International Educational Family Conference! The purpose of the conference is to educate families, caregivers, health providers, and educators about the medical, educational, legal, financial, social ... More
2nd International CDKL5 Research Symposium
6/24/2014 12:00:00 AM
 IFCR is proud to host it's 2nd international science conference for researchers and clinicians in suburban Washington, DC.  This symposium is immediately preceding the Rett Syndrome science symposium and the combined CDKL5/Rett Syndrome ... More
Let's Jive for CDKL5!
6/17/2014 6:00:00 PM
2nd  Annual Fundraiser/Awareness Event at Opal Divine's 3601 South Congress Avenue Austin, Texas Volunteers dance...voters decide the winner of this mini-marathon. Door prize drawings for voters/donors and a grand prize for ... More
Hope Love Cure Avery Ride II
6/1/2014 9:30:00 AM
Hope, Love, Cure, Ride II at Clark Memorial Firemen's Field 210 Elm Street, Old Saybrook, CT 06475 Register or Donate for the event by clicking here . Ride Registrations at 9:30 am Ride begins 11:00 am ... More
Albany Medical Center 2nd Annual Rare Disease Day Conference
2/26/2014 1:00:00 PM
  AMC is proud to announce the 2nd Annual World Rare Disease Day Conference    February 26, 2014  1:00-5:00 PM Hilton Garden Inn Albany, NY   Topic : Pediatric Rare and Complex Diseases ... More
Medical Advocacy Webinar
1/25/2014 12:00:00 AM
The IFCR is excited to kick off our 2014 webinar series with a discussion on Medical Advocacy led by Dr. Tim Benke, MD, PhD. Dr. Benke also heads up our CDKL5 Center of Excellence at Children’s Hospital in Colorado . When faced with the ... More

Events By Year:

• 2014  
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