2018 Denver Conference Session Recordings

Epilepsy Phenotype in CDKL5 Deficiency Disorder:  What we have learned from data contributed International CDKL5 Database  Speaker – Dr. Helen Leonard  Click here to view.

Understanding and Supporting Children and Youth with Cortical Visual Impairment:  An Introduction – Chris Russell, Project Coordinator, New York Deaf-Blind Collaborative.  Click here to view.

Student-Centered AAC for Learners with Cortical Visual Impairment (CVI) – Chris Russell, Project Coordinator, New York Deaf-Blind Collaborative.  Click here to view.

Connecting through Communication:  Forming Initial Connections Anytime, Anywhere, Anyhow – Judy Lariviere, M.Ed., OTR/L Click here to view.

Independent Access to Their Voice-Supporting Social Connections throughout Technology – Judy Lariviere, M.Ed., OTR/L Click here to view.

Keynote – Karen Utley & Presuming Competence – Shifting to Solutions and Success – Judy Lariviere, M.Ed., OTR/L Click here to view.

Challenging Behaviors in Individuals with CDKL5 – Sandra Friedman, MD, MPH Click here to view.

Developing Biomarkers & Outcome Measures for CDD Research – Eric March, MD PhD Click here to view.

Development of Clinical Severity Scale for CDD – Click here to view.

Epilepsy Phenotype in CDKL5 Deficiency Disorder – Dr. Helen Leonard Click here to view.

Ganaxolone Updates & Clinical Trial Design in Rare Epilepsies – Click here to view.

Gastrointestinal Problems in CDKL5 and Rett-like Disorders – Click here to view.

Genetics 101 – What’s in a CDKL5 mutation – Click here to view.

Global Genes Workshop – Click here to view.

Industry Panel – Click here to view.

Let’s Talk-Puberty, periods, and CDKL5 for Girls and Women with Special Medical Needs – Eliza Buyers, MD, FACOG Click here to view.

Movement Disorders – Bernhard Suter, MD Click here to view.

Novel Epilepsy Therapies – Scott Demarest, MD Click here to view.

Updates on Published CDD Research – Tim Benke MD, PhD Click here to view.

We like to Move it, Move it!Physical Rehabilitation and Therapy Modalities in CDKL5 – Anne Stratton MD, FAAP, FAAPMR – Click here to view.

Who do you want on your team and why? – Tristan Dinkel, CNRN, CPN, RN, BSN Click here to view.