5th International CDKL5 Family Education & Awareness Conference

Join Us

June 26-27, 2020
Houston Marriott Medical Center/Museum District
Houston, Texas

What to Expect

There is nothing like getting together with other CDKL5 families! Each year, we catch up with old friends, meet new ones and find a home among people who really understand our world.

The International CDKL5 Family Education & Awareness Conference is also a rare opportunity to get to know the experts in CDKL5 Deficiency Disorder research and treatment. You can ask questions and gather resources for your team back home.

You will learn, laugh and come away invigorated!

Come join us!

Scholarship Opportunity

We will provide a limited number of scholarships to cover the cost of a hotel room for two nights. Applications received no later than April 1, 2020, will be considered. Apply now at this link

Online Registration

Online registration is now open – register now!

Reserve Your Room

The IFCR has arranged a block of rooms at the reduced rate of 89 USD + tax per night for everyone at the conference. You must reserve your room by June 4, 2020, to take advantage of this incredible group rate offered to IFCR attendees. You Can Make Reservations Today.

Local Attractions

The museum district of Houston is filled with world-class museums, theaters, golf courses, and the NRG Stadium. The hotel is also directly across the street from Texas Medical Center. Find out more about local sites here.

A special thank you to Marinus Pharmaceuticals for their generous sponsorship

Our event is hosted in association with
as a proud member of the alliance.

Thank You to our Event Sponsors

*If you would like to learn how you can become a sponsor please email mchurgin@CDKL5.com

Focused Sponsor

Determination Sponsor

Collaborator Sponsors






Previous Conferences

4th International CDKL5 Family Conference
3rd International CDKL5 Family Conference
2nd International CDKL5 Family Conference
Inaugural International CDKL5 Family Conference