To lead the way in finding a cure and treatments for CDKL5 disorder by funding global research efforts, and increasing awareness of CDKL5 disorder, while enhancing the quality of life for those affected by CDKL5 disorder, by providing information, programs, and services.


The IFCR is committed to funding research, both scientific and clinical, that will bring about treatments and, ultimately, a cure for CDKL5.

Family Support

The IFCR is here to support all CDKL5 families and caregivers, whether newly diagnosed or those well into adulthood, by providing the most current information on treatment advances and how to live their best life possible.

Spreading Awareness

The IFCR will raise awareness for this rare disorder to medical community and the public so they can learn about CDKL5 and become involved in our mission.