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Rare Disease Day Rally in Austin, TX

The IFCR was fortunate to have the opportunity to participate in the Rare Disease Day Rally at the State Capitol of Autsin, Texas.  The rally was held on February 28, 2015 in spite of the cold and rain. The event was covered on the local…

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IFCR to Participate in Rare Disease Day 2015

The International Foundation for CDKL5 Research will be participating in the 7th annual observance of Rare Disease Day in the U.S. on February 28, 2015. “Living with a Rare Disease – Day-By-Day, Hand-In-Hand” Rare Disease Day 2015 puts the focus on the daily lives of…

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CDKL5 Research Times, Volume 3

Click here to read the complete CDKL5 Research Times, Volume 3 in its entirety (pdf)   2014 Research in Review Dear Families, Friends and Supporters,   2014 is coming to a close, and we would like to thank each of you for your continued support of the…

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