Press Releases

NIH Awards Natural History Study Research Consortium

10/28/2014
National Institute of Health (NIH) announced awards to expand the Office of Rare Diseases Research part of the National Center for Advancing Translational Sciences (ORDR-NCATS) collaborative Rare Diseases Clinical Research Network (RDCRN). Through the network, physician-scientists at 22 consortia will work with 98 patient advocacy groups to advance clinical research …Read More


IFCR Announces 2nd International Family Conference

2/20/2014
International Foundation for CDKL5 Research (IFCR) Announces 2nd International CDKL5 Family Conference “Opening doors to discoveries… Hope is the Key” WADSWORTH, OHIO, February 20, 2014 –The International Foundation for CDKL5 Research (IFCR) is pleased to announce its Second CDKL5 Family Conference to be held from June 26 through June 28, … Read More


IFCR Announces 2012 Grant Program

3/21/2012
IFCR proudly announces its the 2012 Grant program: The International Foundation for CDKL5 Research has committed $150,000 in grants for clinical research projects to begin studying seizures, gastrointestinal and cardiovascular issues as they relate to CDKL5. In addition, IFCR is pledging an additional $200,000 in research support for ongoing projects. These are your dollars at work! Thank you for …Read More


The IFCR is now a member of NORD

12/19/2011
The International Foundation for CDKL5 Research is very happy to announce that we are now a member of the National Organization for Rare Disorders (NORD). NORD is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services. With this new partnership, IFCR will continue to st…Read More