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Caregivers of Children

One thing that we at the International Foundation of CDKL5 Research are the proudest of is the fact that parents and caregivers of CDKL5 children created the organization. We understand that each child, situation, and family is different; but we have a great sense of understanding for what you are going through was a caregiver of a special needs child.

Work. Other Children. Significant others. Your health. Medicine. Bills. Managing the house. A social life. There are times when the ‘to do’ list is feels never ending!Though nearly a decade old, Caregiving in the U.S. 2009 – A Focused Look at Caregivers of Children, (from the National Alliance for Caregiving in collaboration with AARP and funded by MetLife Foundation) seems to be the most current and comprehensive study of specifically caregivers of children.

We know that many of you downplay how hard you work, but check out these stats:

You absolutely cannot pour from an empty cup


Take one minute right now. Take out a piece of paper or grab your phone and write for one full minute all the activities that make you smile and feel restored. Don’t allow your adult brain to come in and crap all over it! No ‘naps aren’t feasible in my schedule’ or ‘I haven’t done that in years!’. Just make a list and try ( that’s all we can do right?!) to do one a week. That’s all. I’m a fan of tapping! Its results are being recognized all over the world, and I would think it is very useful.

“Tapping provides relief from chronic pain, emotional problems, disorders, addictions, phobias, post-traumatic stress disorder, and physical diseases. While Tapping is newly set to revolutionize the field of health and wellness, the healing concepts that it’s based upon have been in practice in Eastern medicine for over 5,000 years. Like acupuncture and acupressure, Tapping is a set of techniques which utilize the body’s energy meridian points. You can stimulate these meridian points by tapping on them with your fingertips – literally tapping into your body’s own energy and healing power.” You can find this information and SO much more at The Tapping Solution.

Try it now with this initial sequence. Here’s how a basic Tapping sequence works:

Tapping feel silly to you or struggling making a list?


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Whether you use bubble baths, working on the car, or tapping— make time for self-care! You will be a better you, parent, friend, spouse, community member, and, yes, even a better caregiver.