Blog

Spotlight: Zhaolan (Joe) Zhou, PhD

In honor of our 10th anniversary, we are presenting this spotlight on Joe Zhou, PhD, who is an Associate Professor in the Department of Genetics at the University of Pennsylvania. Where do you work? University of Pennsylvania Tell us about your research. (Assume we know…

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CDKL5 Spotlight on Savannah

Meet Savanah, our CDKL5 November spotlight! Mom, Kelli, shares her story! Savannah Maeve Taylor was born on October 23rd, 2016. She is my third child and we were so excited that I was finally having a girl. I’m in the skincare industry and I envisioned…

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First Edition: We Are Here

Chatting with Haley and Poppy First Edition: We Are Here First, we would like to introduce ourselves. I am Haley Hilt, a 12-year-old CDD girl and my partner is my Poppy. He has helped Mommy and Daddy care for me since birth. We live together…

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Spotlight: Jenny Downs, BAppSci, MSc, PhD

In honor of our 10th anniversary, here is a spotlight on Jenny Downs, BAppSci, MSc, PhD. She is an Associate Professor and also co-leads the Child Disability team and the Australian Collaboration to Enhance NeuroDevelopment at Telethon Kids Institute. Where do you work? Telethon Kids…

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Spotlight: Judith LZ Weisenberg, MD

In honor of our 10th anniversary, here is a spotlight on Judith L.Z. Weisenberg, MD. She is an Associate Professor of Neurology in the Division of Pediatric Neurology at Washington University, and Epilepsy Section Co-Director with Robin Ryther, MD, PhD of Washington University Rett Spectrum…

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Spotlight: Wenlin Liao, PhD

In honor of our 10th anniversary, we are presenting this spotlight on Wenlin Liao, PhD, who is an Associate Professor at National Cheng-Chi University, Taipei, Taiwan. Where do you work? National Cheng-Chi University, Taipei, Taiwan. Tell us about your research. (Assume we know nothing!) I…

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Spotlight: Elia M. Pestana Knight, MD

In honor of our 10th anniversary, here is a spotlight on Dr. Elia M. Pestana Knight. She is a pediatric epileptologist in the Pediatric Epilepsy Section, Epilepsy Center, Cleveland Clinic Neurological Institute, Cleveland, Ohio. She is also an Assistant Professor of Medicine at the Cleveland…

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Spotlight: Tim Benke, MD, PhD

In honor of our 10th anniversary, here is a spotlight on Dr. Tim Benke who is Ponzio Family Chair in Neurology Research and Professor of Pediatrics, Pharmacology, Neurology, and Otolaryngology at University of Colorado School of Medicine. Where do you work? University of Colorado School…

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Spotlight: Eric Marsh, MD, PhD

In honor of our 10th anniversary, here is a spotlight on Eric Marsh, MD, PhD. Dr. Marsh is an Associate Professor of Neurology and Pediatrics at Children’s Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania. Where do you work? Children’s…

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Spotlight: Orrin Devinsky, MD

In honor of our 10th anniversary, here is a spotlight on Orrin Devinsky, MD, who is Director of the NYU Epilepsy Center and Professor of Neurology, Neuroscience & Psychiatry at NYU Langone School of Medicine. Where do you work? I work at NYU Langone Health…

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