Blog

COVID-19

IFCR has continued to receive updates from our COE network directors regarding COVID-19. Dr. Tim Benke has shared a few of his COVID concerns with us, and we want to share his recent advice with not only our CDD families but also with the developmental…

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Spotlight: Kristina Cotter, MS, PhD, CGC

In honor of our 10th anniversary, we are presenting this spotlight on Kristina Cotter, MS, PhD, CGC, who is the Research Director at RDMD. Tell us about your research (assume we know nothing). I manage a portfolio of research projects at a company that focuses…

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Second Edition: We Learn

Chatting with Haley and Poppy Second Edition: We Learn Let’s get right to the heart of the matter on this communication thing. Let’s drill down to the basics and focus on what it is like to sit in my wheelchair. I can’t talk; I can’t…

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CDKL5 Spotlight on Grayson

Meet Grayson, our CDKL5 December Spotlight! Mom, Kaylee, shares his story! My husband and I battled unexplained infertility for 3 years. You can imagine the surprise we felt when those two pink lines popped up on the pregnancy test. We were overjoyed that our time…

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Spotlight: Zhaolan (Joe) Zhou, PhD

In honor of our 10th anniversary, we are presenting this spotlight on Joe Zhou, PhD, who is an Associate Professor in the Department of Genetics at the University of Pennsylvania. Where do you work? University of Pennsylvania Tell us about your research. (Assume we know…

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CDKL5 Spotlight on Savannah

Meet Savanah, our CDKL5 November spotlight! Mom, Kelli, shares her story! Savannah Maeve Taylor was born on October 23rd, 2016. She is my third child and we were so excited that I was finally having a girl. I’m in the skincare industry and I envisioned…

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First Edition: We Are Here

Chatting with Haley and Poppy First Edition: We Are Here First, we would like to introduce ourselves. I am Haley Hilt, a 12-year-old CDD girl and my partner is my Poppy. He has helped Mommy and Daddy care for me since birth. We live together…

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Spotlight: Jenny Downs, BAppSci, MSc, PhD

In honor of our 10th anniversary, here is a spotlight on Jenny Downs, BAppSci, MSc, PhD. She is an Associate Professor and also co-leads the Child Disability team and the Australian Collaboration to Enhance NeuroDevelopment at Telethon Kids Institute. Where do you work? Telethon Kids…

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Spotlight: Judith LZ Weisenberg, MD

In honor of our 10th anniversary, here is a spotlight on Judith L.Z. Weisenberg, MD. She is an Associate Professor of Neurology in the Division of Pediatric Neurology at Washington University, and Epilepsy Section Co-Director with Robin Ryther, MD, PhD of Washington University Rett Spectrum…

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Spotlight: Wenlin Liao, PhD

In honor of our 10th anniversary, we are presenting this spotlight on Wenlin Liao, PhD, who is an Associate Professor at National Cheng-Chi University, Taipei, Taiwan. Where do you work? National Cheng-Chi University, Taipei, Taiwan. Tell us about your research. (Assume we know nothing!) I…

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