Disability Discrimination

Having a child with special abilities brings unique joys and struggles; especially when the said child doesn’t speak and is wheelchair bound which is the case for a lot of our CDKL5 families. We want you to have as many resources as possible. If your…

Read More

Recent CDKL5 diagnosis? – We are here to help!

In an informal poll taken on our Facebook page, some of our IFCR parents spoke up about their first questions upon receiving the CDKL5 diagnosis and any words of comfort, advice, or wisdom that they found helpful. Here is what they answered in order of…

Read More