The 2nd International CDKL5 Family Conference

January 01



The IFCR is excited to invite you to its 2nd International Educational Family Conference! The purpose of the conference is to educate families, caregivers, health providers, and educators about the medical, educational, legal, financial, social supports, and research discoveries necessary to successfully care for an affected individual with CDKL5 at various stages of life. This conference provides the opportunity for in-depth discussion, interaction, and hands-on workshops to supplement the information IFCR provides year-round. This is a wonderful face-to-face opportunity to meet other parents and caregivers, as well as experts in the field of CDKL5.

An amazing $89 per night hotel room rate has been secured!  Please make your hotel reservations by visitng

Harnessing the power of collaboration and community, IFCR is proud to partner with the International Rett Syndrome Foundation (IRSF) and related disorders in some joint sessions of common relevance, meals, receptions, and Respite!

If you have any questions/problems with registration, please contact Melissa at

We’re sorry but online registration is now closed.
If you would like to register in person at the event, please contact Melissa.



A HUGE Thank You goes out to all of our conference sponsors!

Gold Sponsor – Instrumentation, Inc.
David & Mary Smelscer



Silver Sponsor – Sleep Safe Beds

Silver Sponsor – United Northern Mortgage Bankers, Ltd.

Silver Sponsor – Ray Romano
from Everybody Loves Raymond and Parenthood

Silver Sponsor – Team Avery


Thank you to our Bronze Sponsors!

We would also like to thank our in-kind product and services donors