Albany Medical Center 2nd Annual Rare Disease Day Conference

January 01


AMC is proud to announce
the 2nd Annual World Rare Disease Day


February 26, 2014
 1:00-5:00 PM


Topic: Pediatric Rare and Complex Diseases
Planning a Diagnostic and Care Management Process
A Community Discussion led by:


Natasha Shur, MD Division Head Genetics
Patricia M. Hopkins, MD Division Head, Pediatric Hospital Medicine
Melody Palange, Program Director, Children’s Health Network
Kelly Gross, Coordinator-Participatory Family Centered Model
Moderator: Ed Fennell, Coordinator AMC Rare Disease Forum and President of NYS Rare Disease Alliance


This forum is an opportunity for parents,regional agencies and professionals to participate in building a leading edge Family Centered Medical Home for children with complex diseases. Please join us and help us initiate a regional program worthy of duplication around the state and nation. Please forward this announcement to your colleagues.


Contact: Ed Fennell
518-729-4262 H
518-285-9701 C