February 26, 2014

 1:00-5:00 PM

Topic: Pediatric Rare and Complex Diseases

Planning a Diagnostic and Care Management Process

A Community Discussion led by:

Natasha Shur, MD Division Head Genetics

Patricia M. Hopkins, MD Division Head, Pediatric Hospital Medicine

Melody Palange, Program Director, Children’s Health Network

Kelly Gross, Coordinator-Participatory Family Centered Model

Moderator: Ed Fennell, Coordinator AMC Rare Disease Forum and President of NYS Rare Disease Alliance

This forum is an opportunity for parents,regional agencies and professionals to participate in building a leading edge Family Centered Medical Home for children with complex diseases. Please join us and help us initiate a regional program worthy of duplication around the state and nation. Please forward this announcement to your colleagues.

Contact: Ed Fennell
518-729-4262 H

518-285-9701 C

RSVP: efennell43@gmail.com