Join Salon 56 in supporting Gracelyn, a loving baby girl diagnosed with CDKL5, a rare genetic disorder.
Salon 56 is a proud supporter of the International Foundation for CDKL5 Research. I am sure you are asking yourself what is CDKL5 and why do we care. CDKL5 is a rare X-linked genetic disorder that results in early onset, difficult to control seizures, and severe neuro-developmental impairment. Why we care – Gracelyn.
“My name is Gracelyn. I was diagnosed with CDKL5 at 5 months old. My seizures started at 6 weeks, and now I have them almost everyday. Although I can’t do all the things my friends can do, I am still a happy girl who can smile and laugh! My favorite thing to do is snuggle like the baby doll I am. Chances are I won’t walk, talk or be able to use my hands when I grow up. My family loves me so much and they will do whatever it takes to find me a cure!”
Join Salon 56’s Cut For A Cure on Sunday, August 18, 2013 from 10:00 am until 4:00 pm.
We will be offering 20% off all Women’s, Men’s and Children’s haircuts and beauty basket raffles. 100% of the proceeds will go to the International Foundation For CDKL5 Research.
Book your appointment in advance and help support a worthy cause! Remember, 100% of the proceeds will benefit the International Foundation For CDKL5 Research.
13289 Black Mountain Road
San Diego CA 92129
Baby Gracie was born in October 2012, and started having seizures at 6 weeks old. She was quickly diagnosed with Epilepsy and has been on multiple meds ever since. So far nothing has stopped her seizures for more than a week or so.
At 3 months old, Gracie was diagnosed with a rare and catastrophic seizure disorder called Infantile Spasms. At 5 months old a blood test for the CDKL5 mutation came back positive. Gracie has been through more in her short life than most of us will endure in a lifetime. She is truly a warrior.
Athena, Gracelyn’s loving mom has created a blog to keep friends and family updated about baby Gracie. To learn more about this extraordinary child visit http://www.caringbridge.org/visit/gracelyn
We may give without loving, but we cannot love without giving. ~Bernard Meltzer