David is almost 14 years old and has endured well over 60,000 seizures with no treatments helping. He cannot walk, talk, nor feed himself, is wheelchair bound and 100% dependent on others to survive. But, we have hope. Due to so few being stricken with this disorder, research funds are scarce.
Please help us in raising money for CDKL5 research. Our family will be going to the conference this June in a Colorado and will be presenting the check to the IFCR team at that time.
Click here to donate today!