Recording artist “Uncle” Gerry Dignan and his wife “Aunt” Denise join with Music Together of Monroe/Newtown’s staff to bring you a spectacular singalong experience. Uncle Gerry has delighted families around the world at events large and small. In addition to being a fantastic Music Together ambassador who knows all our families’ favorite songs, Gerry is a skilled music facilitator, master of improvisation, and educator. He will sing and play his way into your hearts and create a community music event like no other. Get ready for some wiggles and giggles, egg shaking, scarf dancing, hand drumming fun! The event will be held on Saturday, April 21st from 10 am to 11:30 am in Trumbull at St. Joseph’s Center, who graciously donated the space. Tickets are $7.00 per person (adult & child over 8mths) online and $10.00 pp walk in day of event space pending.
This event will be raising money for The International Foundation for Cdkl5 Research. This foundation funds global research to help individuals with Cdkl5 Deficiency Disorder and their families. It is considered a rare disease and there are 3 children currently diagnosed in CT.
We would like to introduce you to one of these children diagnosed with Cdkl5, Gregory, and his mom Marissa. Here is how I have come to know them:
“Gregory and I have been going to Music Together of Monroe/Newtown classes with Miss Julie since he was about 5 months old. A friend of mine, who also had a newborn at the same time, invited us to sign up for the Babies class. Even at that early age, I knew Gregory was developing at his own pace. When your child has disabilities, it can be hard to find activities that are accessible and inclusive. Music Together has been wonderful!
Gregory and I participate in our own unique way, just like everyone else. We love the music and rhythm play and being around other families. I’m so thankful to Miss Julie for supporting us in her classes and for her interest in raising money for research about Cdlk5 Deficiency and Disorder. We are hopeful that research will lead to treatments and maybe even a cure! Please learn more at https://www.cdkl5.com/.” ~ Marissa Bishop