The Walk for a Cure was so much fun and has done so much to raise awareness.
Here are some videos from the walk
We recently created a support group for CDKL5 and we had our first gathering on 4/13 it was great, everyone that signed up to be part of our group were very excited to help us.
Thank you to all who have helped for your support!!
Come join us in taking the first step toward making a difference in the life of someone with CDKL5. All proceeds benefitting the International Foundation for CDKL5 Research.
Walk For A Cure is Saturday, October 13, 2012
Paseo Del Bosque Trail
Walk begins at 9am
National Hispanic Cultural Center
1701 Fourth Street SW
Registration Package Fee: $25 (see attached invitation to view entry form & waiver for other participation & payment options)
Includes: t-shirt, baseball cap, tote bag, snack, automatic entry to win Great Prizes!
Register on Juanjose’s First Giving page.
Click here to watch Juan Jose and his family on the local news
Click here to view flyer, entry form, waiver, pledge form and rules
For more information, questions, volunteer or to make a contribution:
Patricia 831-8841 (firstname.lastname@example.org)
Sonia 340-8066 (email@example.com)
Veronica 903-1999 (firstname.lastname@example.org)