Events



Apr
14

3rd Annual Sayville Supports Sammy

Land's End

3rd Annual Sayville Supports Sammy  Fundraiser at Land’s End April 14th BAND   2D and Ali  DJ Wayne Anthony   ?$65.00…

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May
20

Million Dollar Bike Ride 2017

Highline Parl

The IFCR is pedaling for research! JOIN US NOW Follow this link to learn more and donate directly to Team…

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Jun
02

4th International CDKL5 Congress – Rome, Italy

A.ROMA Lifestyle Hotel

This is an exciting opportunity for all international families to meet in the eternal city of Rome. Hosted by the Italian…

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Jun
10

3rd Annual ‘I Golf for Aiyana’ Tournament

Shamrock Hills Golf Course

Best Ball Scramble 4 person teams $100 for individual/$400 for team Includes: 18 holes golf with cart, lunch, dinner, and…

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Jun
24

Paws for Hope

Valle Del Bosque Park

Tickets go on sale May 24th. $25 includes enrollment to all contests and entry into prize drawings. *Dog Walk *Talent…

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Jul
15

Fourth Annual Strides for Starfish 5K and 1 mile fun run

Acacia Reservation Metroparks

Join us for a charity 5K and 1 mile fun run benefitting the International Foundation for CDKL5 Research! This is…

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Aug
26

3rd Annual Toasting Tanner

Woodstock Knoll Country Club

Come join us for our 3rd Annual Toasting Tanner as we dance, eat, drink and spend money celebrating the beautiful…

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Sep
30

Toast to a Cure 2017

Grimes Mill Winery

The evening is to celebrate our children with CDKL5 and raise research funds for the IFCR.  There will be live…

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Oct
07

CDKL5 6th Annual Walk-For-A-Cure

Kit Carson Park

Join us Saturday, October 7th for our 6th Annual Walk-For-A-Cure! Kit Carson Park, 1744 Kit Carson Avenue SW (Park next…

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