Past Events



Apr
27

4th Annual Sayville Supports Sammy

Land's End

Save the date! April 27th at Lands End please join us for our 4th Annual Sayville Supports Sammy Sands! All…

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Apr
21

Music Together Uncle Gerry Family Singalong Benefit

St. Joseph's Center Genesis Healthcare

Recording artist “Uncle” Gerry Dignan and his wife “Aunt” Denise join with Music Together of Monroe/Newtown’s staff to bring you…

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Oct
07

CDKL5 6th Annual Walk-For-A-Cure

Kit Carson Park

Join us Saturday, October 7th for our 6th Annual Walk-For-A-Cure! Kit Carson Park, 1744 Kit Carson Avenue SW (Park next…

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Sep
30

Toast to a Cure 2017

Grimes Mill Winery

The evening is to celebrate our children with CDKL5 and raise research funds for the IFCR.  There will be live…

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Aug
26

3rd Annual Toasting Tanner

Woodstock Knoll Country Club

Come join us for our 3rd Annual Toasting Tanner as we dance, eat, drink and spend money celebrating the beautiful…

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Jul
15

Fourth Annual Strides for Starfish 5K and 1 mile fun run

Acacia Reservation Metroparks

Join us for a charity 5K and 1 mile fun run benefitting the International Foundation for CDKL5 Research! This is…

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Jun
24

Paws for Hope

Valle Del Bosque Park

Tickets go on sale May 24th. $25 includes enrollment to all contests and entry into prize drawings. *Dog Walk *Talent…

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Jun
10

3rd Annual ‘I Golf for Aiyana’ Tournament

Shamrock Hills Golf Course

Best Ball Scramble 4 person teams $100 for individual/$400 for team Includes: 18 holes golf with cart, lunch, dinner, and…

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Jun
02

4th International CDKL5 Congress – Rome, Italy

A.ROMA Lifestyle Hotel

This is an exciting opportunity for all international families to meet in the eternal city of Rome. Hosted by the Italian…

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May
20

Million Dollar Bike Ride 2017

Highline Parl

The IFCR is pedaling for research! JOIN US NOW Follow this link to learn more and donate directly to Team…

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