Origami Owl Online Fundraising

Skydive for Know 5

Announcing the first ever KNOW5 Fundraiser/Hair Raiser The 1st ever SkyDive 4 Know5 is in the works! I’m looking for…

Rare Disease Day USA

The International Foundation for CDKL5 Research will be participating in the 4th annual observance of Rare Disease Day USA on…

Toasting Tanner

Lily Anna’s Splash for a Cure

Come splash with us! We will have food, swimming, games, raffles, silent auctions and more! Entry is free and donations…

Chuck Wagon Supper Fundraiser

Join us for dinner at Eckert’s Country Restauant and support a great cause! There will be music and a silent…

Lilly Pulitzer Shop & Save Event

6th Annual Walkathon for CDKL5 Research

Team Kiera is hosting the 6th Annual Walkathon for CDKL5 Research, and we invite everyone to join us for a…

Toast to a Cure Wine Tasting Fundraiser

Join us for ‘Toast to a Cure,’ a Wine Tasting Event to benefit CDKL5 Researh    Talon Winery 7086 Tates…

CDKL5 Fundraising Bingo