Past Events



Jan
01

4th Annual Walk-A-Thon in NM

  Join us for our 4th Annual Walk-a-thon to raise awareness for CDKL5. We begin and end at the Kit Carson…

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Jan
01

Cut for a Cure

Join Salon 56 in supporting Gracelyn, a loving baby girl diagnosed with CDKL5, a rare genetic disorder.   Salon 56…

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Jan
01

2nd Annual Lily’s Bike Run

Registration is from 10-11:30am Run begins at 11:30am   Following the run is a pork loin dinner and auction. There…

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Jan
01

Raffle Tickets for Cliff’s Amusement Park

Enter now for you chance to win a 2015 season pass to Cliff’s Amusement Park in Albuquerque, NM! 1st Prize:…

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Jan
01

CDKL5 Awareness Meet-Up in Austin TX

START: 6/14/2013, 5:55 P.M. END: 6/14/2013, 7:30 P.M. WHERE: Austin Marriott South 4415 S. IH-35 Austin, TX 78744   June…

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Jan
01

Let’s Jive for CDKL5!

2nd  Annual Fundraiser/Awareness Event at Opal Divine’s 3601 South Congress Avenue Austin, Texas Volunteers dance…voters decide the winner of this…

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Jan
01

The Avery Rose Lemonade Stand

Event Recap Special Thanks to the Bill’s Crew and all of “Team Avery”, with your help, we poured over 575…

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Jan
01

Skydive for a Cure

Ready to jump? Skydive 4 CDKL5 returning for a third year Published 4:02pm Thursday, June 18, 2015 at www.shelbycountyreporter.com By…

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Jan
01

Aces for Aiyana

A Texas Hold’em tournament in support of Aiyana Biyala And the CDKL5 Foundation.   Thursday, August 15, 2013 – 5pm…

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