Past Events



Jan
01

Aim for a Cure

An event to help finding a cure for children affected by CDKL5. Bald Mountain Shooting Range 2500 Kern Road, Lake…

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Jan
01

Wilcox Energy’s Propane Division Teams Up with Team Avery

Wilcox Energy rallies for local girl with rare disease, CDKL5, for Team Avery WESTBROOK – Last Wednesday was Secretaries Day…

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Jan
01

5th Annual Give Charlie a Chance

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Jan
01

5th Annual Walk A Thon for CDKL5 Research

Join us for our 5th Annual Walk-A-Thon for CDKL5 Research on Saturday, August 3, 2013   Where: Richmond High School…

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Jan
01

Tea Party for Landon

Join us for a Tea Party in honor of Landon for the benefit of CDKL5 research   Guest Speaker: Lisa…

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Jan
01

GivingTuesday

11/29/2016  — 11/29/2016 This year, on Tuesday, November 29, 2016, International Foundation for CDKL5 Research is participating in #GivingTuesday, a…

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Jan
01

Skydive for Know 5, Part II

100% Pure Adrenaline! Yes, we will be jumping out of planes for charity. Why? Because the children deserve it. They…

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Jan
01

Painting for Hope

Please join us for an evening of art, wine & amusement benefiting the International Foundation for CDKL5 Research at Studio…

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Jan
01

Million Dollar Bike Ride

****ONE DAY ONLY RARE DISEASE DAY OPPORTUNITY TO DOUBLE YOUR DONATION BY AN ANONYMOUS DONOR**** On February 29th only, all…

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Jan
01

2013 Toast to a Cure

An evening of wine, food and music to raise funds for CDKL5 research. This year we will be blessed with…

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