Handling the Life and Family Stresses of CDKL5 Deficiency Disorder
For CDKL5 families, finding a new normal is somewhat of an elusive goal. Just as you master one stage or challenge, something new comes along. As parents of children with CDKL5 Deficiency Disorder, we created this guide to share our lessons learned about self-care with other parents in the CDKL5 family.
This guide includes our real-life strategies for:
- Self-Care
- Helping Siblings
- Caring for Your Marriage
- And more!
In addition to this guide, you will receive the IFCR newsletter.