We know how it feels to receive this diagnosis and we are here to help. We understand that this new diagnosis opens up a world of uncertainty, questions, and fears. You are not alone! You will find yourself amongst friends here, all with the common goal of helping our children and finding a cure. We have created a list of Frequently Asked Questions that will be a good starting point for learning more about CDKL5.
The IFCR would like to thank The Giving Doll of Wadsworth, Ohio for generously donating their beautiful, handmade dolls to our new families.