News

2nd Annual Walk A Thon Michigan

With the support of the Richmond Lions Club, the 2nd Annual Walkathon for CDKL5 Research was another successful event!  The weather could not have been more perfect.  We had around 200 friends and family in attendance – including three CDKL5 families from Michigan, one from Ohio, one from Texas, and one from Pennsylvania.  We had many activities for our families to enjoy including music, a bounce house, games and face painting, ‘Da’ the clown, and a variety of food and drinks.  Everyone celebrated our children by coming out to walk, make monetary donations, volunteer time to help run the event, and donate raffle items.  We also were supported by our community with many local business donating food and raffle items.  All together we raised over $26, 000 to help these beautiful children.  Thank you for supporting a cause that is so dear to our hearts!