Karen Utley to Succeed Dr. Katheryn Elibri Frame as President of the International Foundation for CDKL5 Research
The International Foundation for CDKL5 Research announces new presidentRead More
June is CDKL5 Awareness Month
June is CDKL5 Awareness Month and June 17th is CDKL5 Worldwide Awareness DayRead More
Thank You to the Giving Doll
The IFCR would like to thank The Giving Doll of Wadsworth, Ohio for generously donating their beautiful, handmade dolls to our new families.
CDKL5 Natural History Study
Natural History Sites Now Enrolling!
Jan. 1, 2017 – Dec. 31, 2019
Knowledge that will be found in this natural history study is essential for developing more efficient clinical trial designs. Check out the 15 enrolling sites and find one close to you!Read More