CDKL5 Alliance Membership Update

The IFCR has been proudly serving the CDKL5 community since 2009. As a nonprofit organization, we have a duty to fulfill our mission – to treat and cure CDKL5 Deficiency Disorder by funding scientific research, while helping affected individuals and their families to thrive.

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The Lancet Neurology Publishes Review of Clinical Features, Diagnosis and Management of CDKL5 Deficiency Disorder

Quality of life of caregivers and patients, as well as future direction of research, are discussed in detail for this rare and extremely severe disorder

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