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Introducing the C.A.R.E Binder
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August 9, 2024
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The ICCRN Celebrates CDKL5 Family Participation in Critical Clinical Trials Readiness Work
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July 19, 2024
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A CDKL5 Family’s Experience With Home Care
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May 14, 2024
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IFCR at the Million Dollar Bike Ride
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April 9, 2024
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Rare Disease Week on the Hill
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March 12, 2024
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Congratulations Dr. Maurizio Giustetto, 2023 Million Dollar Bike Ride Awardee
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February 21, 2024
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Shop for IFCR
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November 14, 2023
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UX055 Program Update RE: Delayed IND Filing
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November 3, 2023
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VIP Sibling
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October 4, 2023
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CDKL5 Publication Breakdown: specific inhibitor of CDKL5
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August 8, 2023
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IFCR Invited to Ultragenyx Ribbon-Cutting
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July 11, 2023
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Harvard Brain Tissue Resource Center (HBTRC) Statement
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June 16, 2023
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