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CDKL5 PFDD Webinar

Join us on Tuesday, August 6, at 8:00 pm ET for a webinar to learn more about the CDKL5 Deficiency Patient-Focused Drug Development (PFDD) meeting. On November 1, 2019, IFCR and the LouLou foundation will co-host this externally-led (PFDD) meeting for CDKL5 Deficiency Disorder. This is a once-in-a-lifetime opportunity to share the patient voice with a variety of stakeholders involved in developing treatments for CDD.

This webinar is hosted by James Valentine and will introduce the CDKL5 community to the upcoming EL-PFDD meeting, including background information on the FDA and its role in drug development and approval, where the patient voice fits into that decision-making, and important information about the meeting itself, such as the many different ways patients and their caregivers will be able to participate throughout the day.  This is a great webinar not only for those individuals who are expecting to participate, both in-person or by webcast, to help them prepare, but also for those considering whether to attend, so that they can see just how important this opportunity is.

We need everyone to bring their voice to this event and help shape the future of CDKL5 drug development!

Webinar details:

Tuesday August 6 at 8 pm ET.

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Meeting ID: 471 707 018