2nd Annual River Hopping for a Cure
MaryLouise Baker, friend of IFCR, hosted the 2nd Annual River Hopping for a Cure on July 11, 2010 in Mount Pleasant, Michigan. She started this event to raise awareness about CDKL5 and to raise money for the International Foundation for CDKL5 Research. There…
Read MoreLemonade to Help Little Avery
Avery Rose Leopoldino looks like any other toddler, with wavy hair, wearing sunglasses, a summer dress and sandals, but after suffering seizures, she has been diagnosed with a rare condition, She has CDKL5, a mutation on her X chromosome that affects only 200 girls worldwide,…
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