2nd Annual River Hopping for a Cure

  MaryLouise Baker, friend of IFCR, hosted the 2nd Annual River Hopping for a Cure on July 11, 2010 in Mount Pleasant, Michigan.   She started this event to raise awareness about CDKL5 and to raise money for the International Foundation for CDKL5 Research. There…

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Lemonade to Help Little Avery

Avery Rose Leopoldino looks like any other toddler, with wavy hair, wearing sunglasses, a summer dress and sandals, but after suffering seizures, she has been diagnosed with a rare condition, She has CDKL5, a mutation on her X chromosome that affects only 200 girls worldwide,…

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