The International Foundation for CDKL5 Research is very happy to announce that we are now a member of the National Organization for Rare Disorders (NORD). NORD is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services. With this new partnership, IFCR will continue to strive towards their mission to lead the way in finding a cure and treatments for CDKL5 disorders. The IFCR is looking forward to this new partnership and possibilities that it will bring.
To find out more about NORD please visit http://www.rarediseases.org/