You Make a Difference!

Thanks so much for your support!

As a small nonprofit organization led by CDKL5 parent volunteers, we rely on donations to advance our mission. Did you know that the average donation we receive is $53? We make every penny count!

We want you to know that everything the IFCR has accomplished has been due to the generosity of caring people like you.

Donations allowed the IFCR to fund the initial science that got CDKL5 research off the ground. You can see a lot of what we have accomplished so far on our IFCR Timeline. We continue to use donor funds to pursue our research goals, support our CDKL5 community, add to our resource library, and work with our clinic partners to get clinical-trial ready.

We are passionate about our mission, but we cannot do this important work alone. Your donations are vital and so appreciated! From all of us at the International Foundation for CDKL5 Research, THANK YOU!

“We feel strongly that a unified global effort will be necessary to reach a cure and the IFCR plays a key role in that effort.”  -Marth, mom to Elsah

“When we first found out our son had CDKL5 we didn’t know where to turn and honestly it was quite scary. The IFCR has given us knowledge as well as numerous amounts of resources”  -Kaylee, mom to Grayson