EXCITING NEWS! YOUR RESEARCH DOLLARS AT WORK!

The National Institute of Neurological Disorders and Stroke (NINDS) at the National Institutes of Health (NIH) has awarded a five-year R01 research grant, entitled “Pathogenic Studies of CDKL5 Disorder,” to Dr. Zhaolan (Joe) Zhou, Principal Investigator (PI), at the University of Pennsylvania Perelman School of Medicine, and Dr. Douglas Coulter, co-PI, at the University of Pennsylvania Perelman School of Medicine and Children’s Hospital of Philadelphia.

The International Foundation for CDKL5 Research announces new president

June is CDKL5 Awareness Month and June 17th is CDKL5 Worldwide Awareness Day

Natural History Sites Now Enrolling!

Jan. 1, 2017 – Dec. 31, 2019

Knowledge that will be found  in this natural history study is essential for developing more efficient clinical trial designs. Check out the 15 enrolling sites and find one close to you!

If you have watched a health report on the news lately, you can hardly avoid the mention of stem cells and regenerative medicine. What do Zika virus, Parkinson’s Disease, spinal cord injuries, heart disease, and CDKL5 Disorder have in common?

Family Event, Music, Entertainment, Food, Games, Prizes, Face Painting, Contest and Fun for the whole family. Everyone plan to join us and help support a great cause.

Join us to celebrate Savannah’s birthday and support the International Foundation for CDKL5 Research.  Raffle prizes, split the pot, buffet and more!  Click here for details!