Turning Hope
Into Action


Patients in Connect CDKL5


Countries United in Connect


CDKL5 Centers of Excellence in the US

Recently Diagnosed

We've been in your shoes and recommend you start here. Welcome

Centers of Excellence

We have established Centers of Excellence around the United States. Find a Center

Learn From Us

Find the information and resources you need to care for someone with CDD. Resource Library

Connect CDKL5

When someone you love is affected by CDKL5 Deficiency Disorder (CDD), you want to know about every scientific advance and clinical trial that could help them. That is why the IFCR encourages you to participate in our “Connect CDKL5” platform. Be counted with us, because when we band together, we are best able to advocate for our loved ones.
Join Connect CDKL5