Our mission is to lead the way in finding a cure and treatments for CDKL5 disorder. Through funding global research efforts, and increasing awareness of CDKL5 disorder, we hope to enhance the quality of life for those affected by CDKL5 disorder. We do this by providing a variety of information, programs, and services.
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June is CDKL5 Awareness Month and June 17th is CDKL5 Worldwide Awareness Day
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The IFCR would like to thank The Giving Doll of Wadsworth, Ohio for generously donating their beautiful, handmade dolls to our new families.
Natural History Sites Now Enrolling!
Jan. 1, 2017 – Dec. 31, 2019
Knowledge that will be found in this natural history study is essential for developing more efficient clinical trial designs. Check out the 15 enrolling sites and find one close to you!
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If you have watched a health report on the news lately, you can hardly avoid the mention of stem cells and regenerative medicine. What do Zika virus, Parkinson’s Disease, spinal cord injuries, heart disease, and CDKL5 Disorder have in common?
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3rd International Family Education and Awareness Conference at Eaglewood Resort and Spa in suburban Chicago, IL from June 24-26, 2016. 3rd International Family Education and Awareness Conference CONFERENCE PROGRAM WITH FILE…
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The IFCR was fortunate to have the opportunity to participate in the Rare Disease Day Rally at the State Capitol of Autsin, Texas. The rally…
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