Keep Rockin’ Cleveland 2024 Conference - Join us June 13th-15th - Learn more and register at this link.


We Need Your Help!

Thank you for your interest in fundraising for the IFCR! The bulk of our budget comes from the incredible fundraising efforts of our CDKL5 community. Whatever type of fundraiser you host, large or small, we are appreciative of your efforts, and we are here to support you!

How-To Guides

Our Fundraising Committee has put together some “how-to” guides that may help:

Unsure what to say about CDKL5 or how to talk about the work we do? Look here:

A note – please be sure to say thanks. Part of fundraising responsibly is expressing gratitude for your donors. The IFCR sends a message of thanks when we receive donations directly, but it is always good practice to express your own gratitude personally as host. Simple messages on social media, texts, or handwritten notes are easy ways to show your appreciation. Include a bit about why their donation is making a difference for your loved one with CDKL5. This will be welcome news to your caring friends and family!

Getting Started

We ask that you request permission before using the IFCR name, logo or tagline (“hope love cure”).

Meta Fundraisers

Facebook and Instagram make it easy to fundraise! On Facebook, get started fundraising here. On Instagram, simply click “support” to get started.

Use Canva? It’s free to sign up! We’ve created customizable social media posts for birthday fundraising including a customizable Facebook fundraiser header image!

Just Giving

Create your own personalized fundraising webpage at Just Giving. You’ll be able to set a fundraising goal, share your story, post messages, and add photos and videos. Once your page is ready to go, you can easily share it with friends using email, text, or social media!


Do you design? Create a shirt campaign for us on Bonfire! Bonfire is a free online platform where anyone can design, sell, and buy custom products. They handle payment processing, order fulfillment, and customer service so you can focus on sharing your gear while supporting IFCR.

June? Move CDKL5 Forward!

Our annual “Move CDKL5 Forward” event takes place every year throughout CDKL5 awareness month in June! We invite our CDKL5 community to create their own personalized fundraising page and get out to move (walk, run, bike, roll – however!), spread CDKL5 awareness, and fundraise for us.

Have Questions?

Please reach out! We can help answer your questions and get your fundraiser off to a great start! Email Marissa at