Ways to Get Involved


No gift is too small. Every donation matters. Donate here.

Host a Fundraiser

There are infinite ways to host a fundraiser – from partnering with local businesses to creating your own personal fundraising page. Get fundraising ideas here!


The IFCR is always looking for volunteers to serve on our committees, work as Family Support Representatives, and help with a variety of initiatives, including our biennial CDKL5 Family Education & Awareness Conference. Learn more about volunteer opportunities with our organization, or please contact us.

Raise Awareness

Raising awareness and educating others about CDKL5 Deficiency Disorder is one of the most important things you can do! Find out how you can advocate for CDKL5 Deficiency Disorder at this link.

Help Our Researchers

The IFCR sponsors a wide range of research to help find treatments and a cure for CDKL5 Deficiency Disorder. Even simple data about your affected loved one’s symptoms can make a big difference to our understanding of CDD. Find out all the ways you can help be part of finding a cure.