CDKL5 Resource Library

IFCR CDKL5 Guides

CDKL5 Guide for New Parents

Everything you need to know about CDKL5 Deficiency Disorder. Read More...

Finding Your New Normal

Handling the life and family stresses of CDKL5 Deficiency Disorder. Read More...

Medical Advocacy

How to advocate for your child in the medical system. Read More...

Educational Advocacy

How to advocate for your child in the school system. Read More...

Transition to Adulthood

Caring for your child with CDKL5 Deficiency Disorder at age 18 and beyond. Read More...

Clinical Care Guide

Learn about the CDKL5 Deficiency Disorder symptoms, treatments and therapies. Read More...