CDKL5 Resource Library


CDKL5 Guide for New Parents

Everything you need to know about CDKL5 Deficiency Disorder. Read more …


Finding Your New Normal

Finding Your New Normal

Handling the life and family stresses of CDKL5 Deficiency Disorder. Read more …



CDLK5 Educational Advocacy

Educational Advocacy

How to advocate for your child in the school system. Read more …



Transition to Adulthood CDKL5

Transition to Adulthood

Caring for your child with CDKL5 Deficiency Disorder at age 18 and beyond. Read more …




Clinical Care Guide

Learn about the CDKL5 Deficiency Disorder symptoms, treatments and therapies. Read more …



CDKL5 Resources