CDKL5 Resource Library

IFCR CDKL5 Guides

Recommendations for managing individuals with CDD

Available in Multiple Languages: International Consensus Recommendations for the Assessment and Management of Individuals With CDKL5 Deficiency Disorder Read More...

Living with CDKL5

Available in Multiple Languages: This guide removes the American-centric content of the guides below to offer a condensed version of information important to all families regardless of where you live. Read More...

CDKL5 Guide for Parents

Everything you need to know about CDKL5 Deficiency Disorder. Read More...

Finding Your New Normal

Handling the life and family stresses of CDKL5 Deficiency Disorder. Read More...

Medical Advocacy

How to advocate for your child in the medical system. Read More...

Educational Advocacy

How to advocate for your child in the school system. Read More...

Transition to Adulthood

Caring for your child with CDKL5 Deficiency Disorder at age 18 and beyond. Read More...

Clinical Care Guide

Learn about the CDKL5 Deficiency Disorder symptoms, treatments and therapies. Read More...