The IFCR is the leader in providing guides and resources to families and caregivers of people affected by CDKL5 Deficiency Disorder. Please sign up for our newsletter to be notified when we add new guides and information to this resource library.

IFCR CDKL5 Guides

• CDKL5 Guide for New Parents
• Finding Your New Normal
• Clinical Care Guide

Other Resources

• IFCR News
• Denver Conference Recordings
• CDKL5 Research Publications
• CDKL5 International Registry Database Output Tool
• CDKL5 Organizations around the World