CDKL5 Resource Library

IFCR CDKL5 Guides

CDKL5 Guide for New Parents

Everything you need to know about CDKL5 Deficiency Disorder. Read more …
 

 

Finding Your New Normal

Finding Your New Normal

Handling the life and family stresses of CDKL5 Deficiency Disorder. Read more …

 

 

CDLK5 Educational Advocacy

Educational Advocacy

How to advocate for your child in the school system. Read more …

 

 

Transition to Adulthood CDKL5

Transition to Adulthood

Caring for your child with CDKL5 Deficiency Disorder at age 18 and beyond. Read more …

 

 

CDL5-Clinical-Care-Guide

Clinical Care Guide

Learn about the CDKL5 Deficiency Disorder symptoms, treatments and therapies. Read more …

 

 

CDKL5 Resources