COVID-19 Resources

The IFCR is doing our part to prevent the spread of COVID-19 by canceling in-person events and hosting online learning opportunities. We are also keeping up-to-date on information coming out of the CDC, FDA and WHO to help to ensure our community’s safety. IFCR remains committed to being on the front lines of support for our families.

Personal Protection Equipment (PPE)

There is a lot of confusion around personal protective equipment (PPE) so we gathered some resources for you here.

COVID-19 Financial Assistance

211 Network
If you need assistance finding food, paying housing bills, or other essential services visit the 211 Network

Financial Assistance Resources
TailorMed is sharing the most up-to-date information through its Financial Navigation Service. This is a live list that will be updating on an ongoing basis to share any opportunities that arise.

COVID-19 Resource Relief
The purpose of the COVID-19 Resource Relief (CRR) program is to provide financial assistance to individuals living with any disability, diagnosis, or chronic illness to help alleviate the burden of the coronavirus-related quarantines and social distancing practices. This assistance is provided in the form of one $100 Visa Gift Card to be used for food, hygiene products, and other living expenses associated with self-isolation and quarantine. Apply here!

Resources From Other Organizations

FDA:

CDC: Coronavirus Disease 2019 (COVID-19)

Johns Hopkins: COVID-19 Global Cases Map

Child Neurology Foundation: CNF Covid-19 Content

Global Genes: COVID-19 Resource Page

AES Position Statement: COVID-19 and Epilepsy

Epilepsy Foundation: COVID-19 Advocacy Page

UCLA CART: COVID-19 Extensive Resource List

Autism Science Foundation: COVID-19 Family Resources

Webinars (links also include additional information):

If You Know Someone in Crisis: Suicide Prevention Resources

HHS’s Office of Civil Rights issued this guidance that specifies “persons with disabilities should not be denied medical care on the basis of stereotypes, assessments of the quality of life, or judgments about a person’s relative “worth” based on the presence or absence of disabilities. Decisions by covered entities concerning whether an individual is a candidate for treatment should be based on an individualized assessment of the patient based on the best available objective medical evidence.” This is very positive news and the Epilepsy Foundation along with coalition partners is assessing whether further action is needed.

https://www.hhs.gov/sites/default/files/ocr-bulletin-3-28-20.pdf