For Families

We are Here to Help

The IFCR was founded by parents of children affected by CDKL5. We understand your journey and have dedicated ourselves to helping all those affected by CDKL5 Deficiency Disorder. We can help connect you with the resources you need to provide the best care for your loved one.

We recommend you start here:

Get Updates

Sign up for the IFCR newsletter to get updates on CDKL5 research and treatments.

For Families
Research
News
Get Involved