Get Involved

Raise Awareness

One of the best things you can do is help educate others about CDKL5 Deficiency Disorder. Find out how you can help during CDKL5 Awareness Month. We are also always looking for photos of CDKL5 families and events.


The IFCR is always looking for volunteers to work as Family Support Representatives and help with a variety of initiatives, including our biennial CDKL5 Family Education & Awareness Conference. If you would like to learn more about volunteer opportunities, please contact us.

Help Our Researchers

The IFCR sponsors a wide range of research to help find treatments and a cure for CDKL5 Deficiency Disorder. Even simple data about your affected loved one’s symptoms can make a big difference to our understanding of CDD. Find out all the ways you can help be part of finding a cure.

Host a Fundraiser

There are infinite ways to host a fundraiser – from partnering with local businesses to creating your own personal fundraising page. Get fundraising ideas here!


No gift is too small. Every donation matters. Donate here.