Get Involved

You CAN help IFCR reach its goal of finding a cure for CDKL5. We have a long road ahead of us, together, we will get there.

DONATIONS

Make a one-time, monthly, or quarterly donation to the foundation. No gift is too small. Every donation matters.

IN-KIND DONATIONS

In-kind donations are always welcome.  We would love to partner with you.

FUNDRAISE

Fundraising is another way to help. From partnering with local businesses to creating your own personal fundraising page, we can help.

JUNE AWARENESS MONTH

June 17 is Worldwide CDKL5 Awareness day! Share & Learn what you can do to participate.

DOWNLOAD THE IFCR “APP”

IFCR now has a website icon that you can save to your smartphone, laptop, or computer which will then link you to our website. It’s like an ‘app’, connecting you to the latest CDKL5 news and information.

First – load the www.CDKL5.COM website into your browser to open the site.

Once the website is open, follow the steps below based on the device you have.

For Apple phones or tablets:

Select Share button (the square box with an arrow pointing upward in it). It’s on the bar at the bottom of the screen on an iPhone or iPod Touch and at the top of the screen on an iPad.Tap on “Add to Home Screen”Type in IFCR where the word (Home) appears on the first lineTouch “Add”Close this site and when you return to your home screen, the IFCR Icon will be there. Tap on the icon and CDKL5.com will load.

For Android phones or tablets:

Select the Menu dots – Three vertical dots (at the top right corner of your screen) Scroll list and Tap on “Add to Home Screen” Type in IFCR (no spaces) or PoP where the word (Home) appears on the first line. Touch “Add” Close this site and when you return to your home screen, the IFCR Icon will be there. Tap on the icon and the CDKL5.com website will load.

For Windows tablets:

Pull up the app bar – by right clicking or swiping up from the bottom of your screen. Tap the star icon.bTap the pin icon. Type in IFCR, as the name of the shortcut. Click Pin to Start. Close this site and when you return to your start screen, the IFCR Icon will be there. Tap on the icon and the CDKL5.comwebsite will load.

For Windows phones:

Tap the More button (three dots …)Tap Pin to Start in the menu that appears. Type in IFCR, as the name of the shortcut Click Pin to Home Screen or Add to Home Screen. Close this site and when you return to your start screen, the IFCR Icon will be there. Tap on the icon and the CDKL5.com website will load.

JOIN THE IFCR

Sign Up for IFCR emails so we can keep you informed of all of the latest news and progress.