CDKL5 Patient-Focused Drug Development

The PFDD meeting was a success!

IFCR and Loulou Foundation would like to thank you for participating in our Externally-Led Patient-Focused Drug Development (PFDD) Meeting for CDD.

This PFDD meeting took place on November 1, 2019. The purpose of this meeting was for individuals affected by CDKL5 Deficiency and their caregivers to communicate their perspectives on living with CDKL5 Deficiency to drug development stakeholders and the FDA. We will bring together The Voice of the Patient report for release on February 29, 2020.

Please share your voice by participating in our post-meeting survey prior to December 9th, 2019.