SAVE THE DATE!
IFCR has partnered with Loulou Foundation to sponsor a CDKL5 Deficiency patient-focused drug development meeting (PFDD) with the FDA.
When? November 1, 2019.
Where? College Park Marriott Hotel & Conference Center, Hyattsville, Maryland, from 1:30 p.m. to 5:00 p.m.
Why? The purpose of this meeting is for individuals affected by CDKL5 Deficiency and their caregivers to communicate their perspectives on living with CDKL5 Deficiency to the FDA. This meeting is free and open to the public, and you can participate from home via live webcast.