CDKL5 Patient-Focused Drug Development


IFCR has partnered with Loulou Foundation to sponsor a CDKL5 Deficiency patient-focused drug development meeting (PFDD) with the FDA.

When? November 1, 2019.

Where? College Park Marriott Hotel & Conference Center, Hyattsville, Maryland, from 1:30 p.m. to 5:00 p.m.

Why? The purpose of this meeting is for individuals affected by CDKL5 Deficiency and their caregivers to communicate their perspectives on living with CDKL5 Deficiency to the FDA. This meeting is free and open to the public, and you can participate from home via live webcast.

Join us for this groundbreaking meeting to share YOUR experiences living with CDKL5 Deficiency with the Food and Drug Administration (FDA) and other drug development stakeholders. We need your help so please register below to receive up-to-date information and future announcements regarding meeting details.