Seizure Action Plan

There are general steps to help someone who is experiencing any type of seizure. Still, people living with CDKL5 Deficiency Disorder need a customized plan based on their medical history. A Seizure Action Plan is a tool to clearly communicate the appropriate steps to take in an emergency.

February 8-14th has been designated as Seizure Action Plan Awareness Week, launched by a coalition led by LGS Foundation, Dravet Syndrome Foundation, and Tuberous Sclerosis Alliance. In that spirit, we are also happy to share Seizure Action Plan templates for your use available in 8 languages from the Epilepsy Foundation:

General Use Seizure Action Plans:

General use Seizure Action Plan (fillable PDF in English)

Generic use Seizure Action Plan (PDF in Spanish)

General use Seizure Action Plan (PDF in Simplified Chinese)

General use Seizure Action Plan (PDF in Korean)

General use Seizure Action Plan (PDF in Tagalog)

General use Seizure Action Plan (PDF in Vietnamese)

School use Seizure Action Plans:

School use Seizure Action Plan (fillable PDF in English)

School use Seizure Action Plan (PDF in Spanish)

A special thank you to our partners at the Epilepsy Foundation, LGS Foundation, Dravet Syndrome Foundation, and Tuberous Sclerosis Alliance for these important resources.