June is CDKL5 Awareness Month
Each June, we work to educate and raise awareness about CDKL5 Deficiency Disorder. June has special meaning to the CDKL5 community, and June 17th is Worldwide CDKL5 Awareness Day. Find out the backstory of why these dates are so important.
Give a talk at your church, school or community center
Reach out to your local media to educate people about CDKL5 Deficiency – here is a toolkit
Ask your Governor to issue a proclamation about CDKL5 Deficiency
Get together with other CDKL5 families to lend support and have fun!
Whatever you choose to do, we want to hear from you! Please tell us how you are spreading awareness and share your pictures with us. We will feature them on the IFCR’s Facebook page (if you haven’t ‘Liked’ our page yet, be sure to do that).