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June is CDKL5 Awareness Month

June is CDKL5 Awareness Month

We are fortunate to have an entire month dedicated to CDKL5 awareness! In June, we work to educate and spread the word about CDKL5 Deficiency Disorder and we need all the help we can get!

Why June?

June has special meaning to the CDKL5 community and we recognize June 17th as World CDKL5 Day. Why? Because of Glyn and his lovely family. Read his story.

Take Action for CDKL5

Whatever you choose to do, we’d love to hear from you! Please tell us how you are spreading CDKL5 awareness or tag us when you post on social media. We’d love to reshare your efforts!